The Welsh Association of ME & CFS Support is a charity which gives a national voice to people with ME & CFS in Wales, their carers and families, in order to improve services, access to services, awareness and support.
Photographed at the afternoon tea fundraising event at the Llwyn Fedw Gardens, Cardiff are members of The Welsh Association of ME & CFS support group. L-R (back row): Peter Dorkings, Rhian Davis, Mark Morgan and Dennis Jones. (Front Row): Olwen Wilson, Dee Penny and Mary Jones
The group is involved in the following:
- campaigning for recognition of ME as a neurological illness in line with the WHO classification and the results of biomedical research
- campaigning for appropriate health, education, social care services, benefits and research
- raising awareness of ME
- offering support to young people with ME
- providing information in Welsh and English for people with ME, their families & professionals
- aiding local support groups
Dee Penny, the group Treasurer gave an interesting and informative speech before hosting an open discussion on issues involved with having M.E. The M.E support in Glamorgan (Mesig) has over a hundred members and those able participated in the Missing Millions Demonstration in the centre of the city of Cardiff.
Dee said: “What we need to do is keep our voice strong and determined and get governments to back this biomedical research and we need to push for appropriate treatment clinics, fit for purpose, to help patients. In the autumn we will be asking Julie Morgan to show the film ‘Unrest’ in the Senedd to Welsh Assembly Members. We are here today to spread awareness.”
ME is a fluctuating neurological condition which affects the brain at a physical, mental and emotional level. Research has found evidence of gene dysfunction affecting many of the body’s systems including the immune system, neuroendocrine system, autonomic nervous system and muscles. It can have a long term and disabling affect on people of all ages, sexes and ethnic groups. There are an estimated 12,000 people in Wales with the condition – 10% are children under the age of 16.